Rage against the dying of the light

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From time to time I drop into the local cinema on my way home from work on a Wednesday afternoon. It’s half price movie day and I take a chance on whatever turns out to be on offer when I pitch up. It’s a pretty random thing to do, but that’s part of its appeal and I’ve ended up seeing a number of films that I would almost certainly not have gone to see intentionally. The bad ones are improved by an ice-cream, the good ones leave my mood improved no end and the challenging ones make me think. Sometimes they make me cry.

This was one of those weeks. The film was The Father, starring Anthony Hopkins as the main protagonist (Anthony) and Olivia Colman as his daughter (Anne).

Reviews describe this film as Hopkins’ performance of a lifetime and a ‘devastatingly empathic portrayal of dementia.’ I found it beautiful – and desperate – and heart breaking – and confronting – and altogether too close to home. The overwhelming feeling was of watching a mind coming undone, experiencing Anthony’s increasing confusion and disorientation and never knowing quite what’s real and what’s not. It was unsettling, to say the least.

MiL often tells us that she finds her life both frustrating and confusing. She says she feels unmoored, as though all her familiar anchors are drifting out of reach – or are no longer recognizable. We nod sagely, sympathise and support, feeling that we understand – at least to some extent – what she means. Having read up on Alzheimer’s disease, we know it progressively destroys memories and abilities and that it’s irreversible. So her feelings aren’t unexpected.

But this film put some of those conversations into a more relatable context. Writer-director Florian Zellar catapults the audience into experiencing Anthony’s shifting realities with him – both those inside his head and in the world around him. We end up about as confused as he clearly is as we all try to make sense of the conflicting situations and information. It was uncomfortable. As was the realisation that my ‘understanding’ of MiL’s situation is, at best, limited.

On my way home, Dylan Thomas came to mind. ‘Do not go gentle into that good night,’ he says. And I couldn’t agree more. Anthony’s almost violently expressed frustration and fear, confusion and uncertainty seemed all too reasonable. He should rage, rage against all the points of light going out for him, day after day, leaving him less than he was.

Any day in which MiL feels connected to her life in some way, rather than a confused passenger waiting for the right stop, is a good one. And no matter how pragmatic I am, how full that half-full glass can be made to seem, it’s a desperately sad thing to watch dementia claim someone dear to us.

Rage, rage against the dying of the light!

A good day

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Over the past weeks we’ve been spending a great deal of time with Mil, listening to stories about family members, friends, places and experiences from the past that remain important to her. It’s also brought us up to date on how narrow her world has become and just how much ground she’s lost over the past few years.

Mil tells us that there are now such big blanks in her memory that it’s like looking into the void. It’s sad and awful – but so much worse for her, particularly combined with rapidly failing eyesight and some hearing impairment. She feels lost, she says, helpless and a burden to everyone around her as a result of all this. 

My heart aches after conversations like these. We’re left feeling helpless in the face of the inevitability of Alzheimer’s disease and the long, slow goodbye to someone we love. It’s beyond sad to witness someone gradually disappearing before our eyes.

This all-pervasive feeling of sadness led me to the work on grief and grieving done by Dr Elisabeth Kübler-Ross. She documented how, broadly speaking, we process the landscape of loss via a number of emotional stages, starting with denial.  This, she said, is often followed by anger, then negotiation or bargaining to try to attain a different outcome or at least some respite. When this fails, depression very often sets in – a period of profound grieving for all that is lost or can’t be achieved. According to Ross, it is only after travelling this terrain in part or whole, that acceptance is likely to emerge.

Like grief, dementia has a number of stages to it, manifesting in different ways from person to person and progressing at different rates. But grief has a direction, the possibility of an end in sight. Dementia, however, is more like a whirlpool that drags the person with the affliction down in ever-diminishing circles. It sucks their understanding and sense of self away step by step, each of the phases incrementally worse than the previous one.

Navigating this landscape is so very much more dreadful than that of other sorts of grief. With dementia, the grieving process never seems to get to the point of acceptance for the person with the disease or, perhaps, for their family. Each realisation of loss brings with it a renewal of the cycle of grieving.

What can family members, friends and other bystanders actually do to help? Dementia Australia suggests planning ahead – but realistically, how can one plan for this? Certainly advance care planning, including ensuring that a will and clear health directive are in place, takes care of practical matters. But how can anyone manage the day to day reality of it all?

We’ve realised that for now, being present, flexible and positive is all we can do. Yesterday was a good day. We all went out for a birthday lunch and we all had a good laugh over something completely random. Seeing Mil happy brightened the day for everyone and made it really clear just how important it is to be as upbeat and to make the most of every positive moment.

Memories

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Public Speaking is widely touted as being one of the top three fears that people have. It ranks up there with death of a loved one and terrorist attacks  — and well ahead of clowns.

So why did I join Toastmasters when we first moved to Australia?

Mostly it was to meet new people and to try to form connections, both personally and professionally. But it was also my all-or-nothing go at overcoming the shyness I tended to feel when speaking to strangers.

Right from the first meeting I had to work on overcoming the shaking hands, dry mouth and elevated heart-rate that arrived unfailingly every week – but I kept going. Feedback from people who had no vested interest in anything but my ability to speak in public was tremendously useful. I learned to ensure that my prepared project speeches addressed project criteria succinctly, to pace my delivery, and to be able to respond to impromptu topics or questions even when the subject matter was something I knew nothing about.

Much to my surprise, despite being quietly terrified every single time I stood up to speak, it was fun. The techniques for coping with delivering presentations and managing public speaking-related stress proved invaluable and I carried on going to meetings for a number years.

In due course and after conquering various speech challenges, taking part in competitions and so forth, I eventually moved on to other things – but I wasn’t ready to get rid of my file of prepared speeches and very insightful feedback reports, so I stashed the file in a cupboard for later.

Later happened this weekend. My study was due for a clear out and, in the process of sorting, tidying and binning, I unearthed the file… and had to decide whether to just chuck the whole lot out or to have a look. Predictably, curiosity won out.

Although the content is twenty years old, some of it still resonated — so I thought I might share one or two and see what people think 🙂

This one was my first ‘advanced’ TM speech. Entitled Get Personal, the speech objectives are: (1) to learn the elements of a good story,  and (2) to create and tell and original story based on a personal experience. Time: 6 – 8 minutes.

So: are you sitting comfortably? Then let’s begin…

__________________________________________

There’s nothing like it

A perfect day. Clear skies, not too hot, and a steady 15-knot wind. What more could a novice windsurfing enthusiast hope for?

In a flurry of enthusiasm I rallied the troops, getting the children organised and hauling my younger brothers (who were staying with us at the time) out of bed. Next I rushed around like a headless chook, packing the car with the essentials: sailboard, picnic and muscle power (the brothers, B & R), then off we went. A day of fun at on the water was less than an hour away…

I’d only been on a windsurfer three or four times before, but I was your archetypal enthusiastic beginner: incredibly keen… but not very competent! I was at that (unfortunate) stage of being able to get a sailboard run with the wind… but turning round and coming back still posed something of a challenge!

After what seemed like an age, we were finally there and unpacked. Once the board was rigged: sail taut, mast secured and fin attached, I dibsed first turn. Squelching out through the muddy shallows, I stepped up onto the board and tipped the sail forward. Ignoring B & R,  who were standing knee-deep in the water behind me chorusing Don’t go too far out! You need to PRACTICE those turns…, I set off across the lake – the wind in my hair, the flies in my teeth, a grin from ear to ear. THIS was freedom! THIS was sheer exhilaration…

After a while I realised just how far I’d gone… oh-oh … time to turn around….
Now, how does it work again??: sail forward? NO! That makes it go faster!
Try sail back? Ooops…… Ka-splosh!

Wrong  choice!

That was the start of a long, frustrating and totally exhausting struggle to get back to shore. Water logged, I scrambled onto the board… got to my feet… pulled the sail up… got my balance… moved the sail….
Ka-splosh!
Right… Clambered onto the board… staggered to my feet… hauled the sail out of the water… slipped on the wet board… Ka-splosh!

And rinse and repeat, until I couldn’t think coherently past the sound of my heart racing… and tears weren’t far off.

What I didn’t know is that my brothers had been taking a keen interest in my activities, watching anxiously from the shore as I drifted further and further away. After a while it was obvious that I wasn’t going to make it back without help. So they flipped a coin as to who’d stay onshore to keep an eye on the children and who’d get the thankless task of swimming out to rescue me.

By this stage I’d given up to have a rest and was lying full length on the board, shivering, wheezing and oblivious to anything but my own sorry state of affairs. So my surprise and delight when a wet (and slightly abusive) younger brother popped his head over the edge of the board was heartfelt. Hero status immediately awarded!

Okay, Nik, you sit on the back and DON’T move: I’ll sail us in, okay?
I sat.

R – a regular and competent board sailor, effortlessly plucked the sail out of the water, turned the board and headed for shore. I sat on the back of the board like a stranded, bedraggled, miserable mermaid.

And it must have been these thoughts that caused me to move — ever so slightly — and catapult us both back into the water!

Even worse, there was no time to avoid the descending boom. It came flying towards me, hitting me squarely on the bridge of the nose as we exploded off the board.

Panic!
I didn’t know which way was up and had a blinding pain in my head. I kicked desperately, hoping to find the surface. The water was cold and murky, and the weeds seemed to wrap themselves around my legs as I struggled to get away.

Finally my head broke the surface and I drew in a giant breath as I was hauled up onto the board like so much limp washing.

Sit still and put that on your face!
R thrust his wet tee-shirt at me and started paddling frantically for shore. Bemused I put the tee-shirt up to my face, pulled it away and looked at it. It was covered in blood… MY blood.

B had been watching the action from the shore and, with rare anticipation, had grabbed all the picnic gear, flung it in the back of the car and strapped the children into their car seats. Then he raced down to the waters edge to help carry me and the board in.

After that things became somewhat confusing for a while.  The boys rushed me to the emergency ward of the local hospital, where people asked lots of questions that seemed totally irrelevant and got me to sign forms, so many forms, in triplicate.

It turned out that the sharp edge of the boom had made a deep ragged gash across the bridge of my nose and, just to make my day, x-rays showed that the force of the blow had actually also broken my nose. Luckily the break was a clean one and there was no displacement, so my nose didn’t have to be realigned.
Whew.

But I did have to have the obligatory anti-tetanus shot and the gash had to be stitched. The duty doctor injected a local anaesthetic into the wound, which was an eye-wateringly painful experience.  Then the stitching started – and I can only imagine what it would’ve been like without  the local anaesthetic!

By the time I left the hospital a couple of hours later my face had started to swell, my eyes were puffy and looked like I’d gone at least a couple of rounds in the ring with Mike Tyson. Not a pretty sight.

The brothers were very kind. They minded the children, drove me home, made me tea and waited until I was safely settled on my bed with an ice pack on the swelling before saying ‘I told you so!’ in many and different ways. They read big sister the riot act about being irresponsible, which was such a role reversal that it was almost – but not quite – funny.

All of the week that followed, as the swelling gradually went down and the bruises on my face went through all the colours of the rainbow, I thought about what they had said and about what had happened. I felt silly — and my nose hurt A LOT, which re-enforced the silly-feeling. But I was determined it wouldn’t stop me from sailing. I’d learn how to turn that board so that I would never get stuck and have to be rescued again!

So, the next weekend, I was out on the water again – battered and bruised, looking like the walking wounded, practising turn after turn after turn, until I had it just right. Then I was off — flying across the water:  a plume of spray behind me — and a wealth of windsurfing ahead 🙂

A week of things

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Despite my best intentions, this Sunday morning saw me up (and dressed) by 6am. The plan was to sleep in, have a lazy breakfast in bed and read my book for a while. But the sleep fairy scampered off at the usual time, leaving me wide awake – so it was clearly tea o’clock, followed by an attempt at blog o’clock, despite being rather low on inspiration.

Returning to (almost) full-time work this week has stretched me in numerous ways, not the least of which has been the impact of daily interaction with large numbers of people and the need to present a happy-smiley-helpful face to them all. Every day. After a year of semi-hermiting, this required some internal adjustment and quite a few early nights to recharge.

Glyde-In Community Learning Centre

There are upsides, of course, ranging from increased income for a few weeks (always useful) to the delightful work environment and the extraordinary community spirit I encounter on-site daily. It really is a lovely place to work.

But, whilst it’s all good fun, the daily rush has reduced my contemplation time to the drive to and from Fremantle each day. Since the 20 minute commute each way is mostly spent either mentally preparing for work or recovering from it, I completely failed to come up with a blog-topic. A cool, quiet house and a cup of tea in the early hours of this morning made me introspective, however, and my mind started to fill up with various things from the past week – so I’ll share those.

  • Being a grandparent can be an emotional rollercoaster. My grandies are fur-babies: two adorable Ocicats, Cloud and George, and their very cute (pure black) companion-kitty, Corvy.  They’re usually a source of endless entertainment, amusing stories and cuddles, but last week was rather different. Over the space of four days we all went from anticipation to worry, dismay to serious concern, followed by relief, elation and – finally – crushing disappointment. and sorrow. I can only guess what Daughter Dearest and K went through as they assisted Cloud to give birth to one kitten, which came out backwards and didn’t survive. As if that wasn’t enough, after an extended labor they then rushed her off to the vet, where a second kit was delivered by caesarean. That little girl only survived for two days. *Much sad* Cloud’s recovering well and her parents are bouncing back slowly, but it’s been a rough week for them. *All the hugs*

  • I love the rain, particularly when its accompanied by cool weather. But this time of year is usually very hot and dry, with average highs of 31.7 and lows  of 18.3 degrees. Despite bracing myself for it, I generally find the unrelenting heat (particularly at night) oppressive. So the local impact of a tropical low over the western Pilbara provided a very welcome respite this week, delivering record rainfalls and the coldest February day on record. Hurrah! Of course it helped that flood waters weren’t an issue locally, for which I’m grateful – but it was good to see some people able to make the most of things!

  • Compost bins are a combination of ghastly-eek and great satisfaction. The eek is the occasional wriggly or scuttley thing, along with the somewhat squishy texture of some of the compost. Rubber gloves are the answer to all that and reduce the aargh-factor substantially. The satisfying part is filling six big bags with compost – and using four of them when planting out our fig tree and transplanting our rose bushes later in the day.

  • Flying trees are rather exciting! It was pretty amazing to see just how efficiently two people could dig up our 3.6 metre Ugly Tree (aka Dragon Tree / Dracaena Draco) and remove it. We’d advertised it as ‘bring your own crane for removal’ – and they did! We were happy to bid the Ugly Tree a fond farewell and will be planting a Persimmon in its place – along with some more of our home-grown compost 🙂

  • Finally, I stepped up and  joined a newly formed writing group at the local library this weekend. My objective is to challenge myself to write different things and in different ways. As a warm-up exercise, we each chose a writing prompt from a set of cards (provided). My prompt was Open your mind to new ideas – which was rather amusing under the circumstances. Our homework assignment for next time is to write a short piece, focusing on a specific word. In this instance the word is decay – and it’ll be interesting to see what responses emerge.

There were other things (it was a busy week), but these are the ones that floated to the top. How was your week?

Adventures with Napoleon Cake

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I’d never heard Napoleon Cake until Ma-in-law put in a request for one for her 80th birthday. I can see why her mum only used to make it on rare (and very special) occasions, despite it being a much-loved treat. Whilst the cake part is simple enough (it’s just a sponge), the surrounding layers are what make it a bit of a challenge – the first time around anyway.

It starts with a layer of baked puff pastry, topped with a generous layer of butter cream (aka ‘mock cream’). Next comes a layer of raspberry jam, the sponge cake, more jam, more ‘cream’ and then a second layer of baked pastry. On top of this little lot goes a layer of sticky super-sweet pink icing to finish it off.

Protip #1: Back in the day, Ma-in-law’s mum used to actually make the pastry by hand, as it was well before the days of the frozen store-bought variety. Seriously, just use the frozen variety! It cuts down the construction time and simplifies things a whole bunch. Besides which, when she tasted the test-run, Ma said it was much nicer and lighter than the pastry her mum used to make 🙂

The cake took a whole afternoon to prepare and construct, but looked amazing in the end. The tricky parts were the butter cream, the bake-time for the pastry, the sheer stickyness of it all – and bringing it all together.

Protip #2: An extra pair of hands is essential at the end point. Himself was calm throughout my sticky dramatics and his help really was invaluable for the final assembly stage.

The response from visitors here for the afternoon ranged from Delicious! More? (Suz) to OMG! Instant diabetes… but sooo good! (K) 🙂

Daughter Dearest suggested we try a cream cheese icing in place of the butter cream to cut down on the sweetness factor, which might be worth a try at some point.

But not for Ma-in-law’s birthday party. What we made was exactly what she wanted, sweetness overload and all. It was 100% worth it when we took some of the finished product round to the Parents’ place that evening. Ma opened the front door and her whole face lit up.

Oh!, she said. Napoleon Cake! How Wonderful!

She enjoyed every delicious morsel – and has put in a firm request for a super-sized version for her birthday. So we’ll be having a Napoleon Bake-a-thon here in late February to construct the one cake to rule them all. If anyone wants to give a hand, let me know. 🙂

Here’s the recipe in case you’re interested in giving it a try at home. It’s based it on one provided by Sharen from Bundaberg, Queensland.  Her recipes range from pure indulgence to plain comfort food. They’re all traditional family favourites and she’s well and truly tested them all. I’m going to give her breakfast bake a try next.

For your Napoleon Cake you’ll need:
2 sheets of frozen puff pastry
½ cup raspberry jam – and everything listed below for the other layers.

For the Sponge Cake
2 large eggs
1 tsp vanilla bean paste
⅓ cup caster sugar
⅓ cup self raising flour
2 Tblsp cornflour

For the Butter Cream:
125g unsalted softened butter (½ cup)
2 cups icing sugar, sifted
2 Tblsp milk
¼ – ½ tsp vanilla bean paste / vanilla essence

For the pink icing
1 cup icing sugar
1 tsp soft butter
A dash of red food colouring
2 tsp milk (approx)

Protip #3: Start by making the sponge cake layer; it’s the easiest bit!

The Cake Layer
•    Preheat oven to 180C
•    Line a square cake pan with baking paper – mine is about 20cm and it worked well
•    Beat eggs and vanilla (use an electric mixer!) while you gradually add the sugar. Continue beating until the sugar is all dissolved and the mix light and fluffy
•    Sieve the flour & cornflour, then gently fold it into the mixture
•    Pour the mix into your prepared cake pan and bake for approx 15 minutes. The cake should be golden and springy to the touch when you take it out
•    Remove the cake from the tin and place on cake rack to cool completely **

The Pastry Layers
•    Increase your oven temperature to 210C
•    Line 2 baking trays with baking paper and place one puff pasty sheet on each
•    Bake for about 10 minutes, until the pastry is well risen, golden and crispy looking
•    Leaving the hot pastry on the trays, gently flatten each sheet with the bottom of the (now empty) cake tin**
•    Using the cake tin as a template, trim the pastry sheets to the same size as the cake
•    Now leave the pastry on the baking trays to cool
Protip #4: Don’t take the pastry out too soon or you’ll need to redo this step. #life lesson!

The Butter Cream Layer
•    Beat the softened butter until smooth; use the paddle attachment of your electric mixer
•    Gradually beat in the icing sugar until well mixed & fluffy
•    Add vanilla to taste
•    Add the milk and beat again until a smooth consistency and texture is achieved
Protip #5: My first attempt at this was an epic (!) fail. Be patient. Taste as you go and make sure the end result really is smooth.

Preparing the Pink Icing
•    Sieve the icing sugar into a microwave safe bowl
•    Mix in the butter and enough milk to form a stiff paste
•    Add food colouring until you have a nice shade of pink 🙂
•    Microwave the icing 10 seconds, then stir well
•    Repeat this step until the icing mix is runny

Assembling the Cake
•    Place one baked puff pastry sheet on a serving plate & spread it with half the butter cream
•    Now spread half the jam on top of the cake and invert the cake onto the butter cream layer
•    Carefully spread the rest of the jam on top of the cake layer
•    Next spread the remaining butter cream on one side of the remaining sheet of baked puff pastry, then invert and position the pastry sheet on top of the other layers.
•   Pour the icing onto the top of the cake (slowly and carefully) and smooth with a knife / spatula
•    Pop the cake in the fridge to let the icing and mock cream firm up a bit

To Serve
•    Cut the cake into rectangles to serve
•    Use a serrated knife to do this. ‘Saw’ through the pastry gently so that you don’t squish the filling
Protip #6: This cake is SUPER sweet, so don’t make the slices huge!

Another version of this can be found in the NZ Women’s Weekly